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Enroll -HD: A Prospective Registry Study in a Global Huntington's Disease Cohort

Join Enroll-HD study to help understand Huntington's Disease better.

Recruiting
18 years and older
All
Phase N/A

Huntington's Disease (HD) is a condition that affects the brain and movement. The Enroll-HD study is a large project collecting information and blood samples from people affected by HD, those at risk, and healthy volunteers. This study includes over 30,000 people from 23 countries. It aims to help researchers learn more about HD and find new ways to treat it. Participants visit once a year for check-ups, and the study lasts indefinitely. The information collected is shared with scientists around the world to help them with their research.

  • Participants visit once a year, with no set end date.
  • Includes over 150 clinical sites in 23 countries.
  • Open to people with or at risk for HD, and healthy volunteers.
Study details
    Huntington's Disease

NCT01574053

CHDI Foundation, Inc.

27 June 2024

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FAQs

Learn more about clinical trials

What is a clinical trial?

A clinical trial is a study designed to test specific interventions or treatments' effectiveness and safety, paving the way for new, innovative healthcare solutions.

Why should I take part in a clinical trial?

Participating in a clinical trial provides early access to potentially effective treatments and directly contributes to the healthcare advancements that benefit us all.

How long does a clinical trial take place?

The duration of clinical trials varies. Some trials last weeks, some years, depending on the phase and intention of the trial.

Do I get compensated for taking part in clinical trials?

Compensation varies per trial. Some offer payment or reimbursement for time and travel, while others may not.

How safe are clinical trials?

Clinical trials follow strict ethical guidelines and protocols to safeguard participants' health. They are closely monitored and safety reviewed regularly.
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