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DECIDE: Dyads and Families

Participate in our family-oriented clinical study until October 2023.

Recruiting
18 years and older
All
Phase N/A
**Study Purpose:** This research aims to create and test a special program to help adult daughters make healthcare choices for their parents who have memory loss. It focuses on improving the lives of African American families. **What Happens in the Study:** There are two parts. In the first part, daughters and their parents with memory loss will answer questions through surveys and interviews. These questions involve things like age, culture, family roles, and healthcare experiences. In the second part, participants will help design a helpful program using their experiences and ideas. **Who Can Join:** African American parents aged 50 or older with mild to moderate memory loss and their adult daughters (or daughters-in-law) can join. Daughters must be 18 or older and help with daily activities and care choices. **Key Points to Consider:** - **Time Commitment:** Surveys take about 1 hour, and interviews last 1 hour. Some sessions in phase 2 last 1.5 hours. - **Location:** Mostly online, with interviews done remotely. - **Privacy:** Your information is kept private and not linked to your identity. This study helps develop better support for families dealing with Alzheimer's and other memory-related conditions.
Study details
    Dementia
    Alzheimer Disease
    Caregiver Burden

NCT05139290

Emory University

22 June 2024

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What is a clinical trial?

A clinical trial is a study designed to test specific interventions or treatments' effectiveness and safety, paving the way for new, innovative healthcare solutions.

Why should I take part in a clinical trial?

Participating in a clinical trial provides early access to potentially effective treatments and directly contributes to the healthcare advancements that benefit us all.

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The duration of clinical trials varies. Some trials last weeks, some years, depending on the phase and intention of the trial.

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Compensation varies per trial. Some offer payment or reimbursement for time and travel, while others may not.

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Clinical trials follow strict ethical guidelines and protocols to safeguard participants' health. They are closely monitored and safety reviewed regularly.
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